Gambaran Beban Family Caregiver dalam Perawatan Pasien dengan Penyakit Kronis Disertai Disabilitas Fisik

Authors

  • Nina Dwi Lestari Universitas Muhammadiyah Yogyakarta
  • Milda Latifah Azzahro Universitas Muhammadiyah Yogyakarta

Keywords:

beban caregiver, disabilitas fisik, family caregiver, kualitatif, penyakit kronis

Abstract

Gambaran Beban Family Caregiver dalam Perawatan Pasien dengan Penyakit Kronis Disertai Disabilitas Fisik. Peningkatan prevalensi penyakit kronis yang disertai disabilitas fisik meningkatkan kebutuhan perawatan jangka panjang di rumah dan menempatkan family caregiver sebagai penopang utama keberlanjutan perawatan pasien. Peran ini berpotensi menimbulkan beban fisik, psikologis, finansial, dan sosial yang dapat memengaruhi kualitas hidup caregiver serta mutu perawatan yang diberikan. Penelitian ini bertujuan untuk menggambarkan beban yang dialami family caregiver dalam merawat pasien dengan penyakit kronis disertai disabilitas fisik. Penelitian ini menggunakan desain kualitatif dengan pendekatan fenomenologi. Partisipan berjumlah enam family caregiver yang dipilih menggunakan teknik purposive sampling di wilayah Puskesmas Bantul 1, Banguntapan 1, dan Bambanglipuro. Jumlah partisipan ditetapkan karena data telah mencapai saturasi. Data dikumpulkan melalui wawancara mendalam semi-terstruktur dan dianalisis menggunakan thematic analysis. Hasil penelitian mengidentifikasi empat tema utama, yaitu beban fisik, psikologis, finansial, dan sosial caregiver. Temuan ini menunjukkan bahwa peran family caregiver bersifat kompleks dan menimbulkan beban multidimensi.

References

Azizatunnisa’, L., Probandari, A., Kuper, H., & Banks, L. M. (2025). Health insurance coverage, healthcare use, and financial protection amongst people with disabilities in Indonesia: analysis of the 2021 National Socioeconomic Survey. www.thelancet.com

Barakat, Z., Sacre, H., Khatib, S., Hajj, A., Bou Malham, C., Haddad, C., Akel, M., M. Zeenny, R., Abou Abbas, L., Barakat, M., Salameh, P., & Rachidi, S. (2025). Examining burden among caregivers of community-dwelling older adults in Lebanon. Scientific Reports, 15(1). https://doi.org/10.1038/s41598-025-05626-5

Beheshtaeen, F., Molazem, Z., Najafi Kalyani, M., & Mohebbi, Z. (2025). Caregiving Burden in Family Caregivers of Patients with Coronary Artery Bypass Graft Surgery: A Content Analysis Qualitative Study. Iranian Journal of Nursing and Midwifery Research, 30(3), 433–440. https://doi.org/10.4103/ijnmr.ijnmr_129_24

Biliunaite, I., Kazlauskas, E., Sanderman, R., & Andersson, G. (2022). Informal caregiver support needs and burden: A survey in Lithuania. BMJ Open, 12(1). https://doi.org/10.1136/bmjopen-2021-054607

Centers for Disease Control and Prevention. (2024, October 4). About Chronic Diseases. Https://Www-Cdc-Gov.Translate.Goog/Chronic-Disease/about/Index.Html?_x_tr_sl=en&_x_tr_tl=id&_x_tr_hl=id&_x_tr_pto=tc. https://www-cdc-gov.translate.goog/chronic-disease/about/index.html?_x_tr_sl=en&_x_tr_tl=id&_x_tr_hl=id&_x_tr_pto=tc

Chen, D. D., Zhang, H., Cui, N., Tang, L., Shao, J., Wang, X., Wang, D., Liu, N., & Ye, Z. (2021). Cross-cultural adaptation and validation of the caregiver contribution to self-care of chronic illness inventory in China: A cross-sectional study. BMJ Open, 11(9). https://doi.org/10.1136/bmjopen-2021-048875

Choi, J. Y., Lee, S. H., & Yu, S. (2024). Exploring Factors Influencing Caregiver Burden: A Systematic Review of Family Caregivers of Older Adults with Chronic Illness in Local Communities. In Healthcare (Switzerland) (Vol. 12, Number 10). Multidisciplinary Digital Publishing Institute (MDPI). https://doi.org/10.3390/healthcare12101002

Duangjina, T., Hershberger, P. E., Gruss, V., & Fritschi, C. (2025). Resilience in family caregivers of Asian older people with dementia: An integrative review. In Journal of Advanced Nursing (Vol. 81, Number 1, pp. 156–170). John Wiley and Sons Inc. https://doi.org/10.1111/jan.16272

Honda, A., Nishida, T., Ono, M., Tsukigi, T., & Honda, S. (2025). Impact of Financial Burden on Family Caregivers of Older Adults Using Long-Term Care Insurance Services. SAGE Open Nursing, 11, 23779608251383384. https://doi.org/10.1177/23779608251383386

Hou, C. H., & Chen, P. L. (2024). Optimism, Social Support, and Caregiving Burden among the Long-Term Caregivers: The Mediating Effect of Psychological Resilience. International Journal of Mental Health Promotion, 26(9), 697–708. https://doi.org/10.32604/ijmhp.2024.051751

Hu, Y., Yang, Y., Gao, Y., Zhao, L., Chen, L., Sui, W., & Hu, J. (2024). The impact of chronic diseases on the health-related quality of life of middle-aged and older adults: the role of physical activity and degree of digitization. BMC Public Health, 24(1). https://doi.org/10.1186/s12889-024-19833-8

Intas, G., Rokana, V., Stergiannis, P., Chalari, E., & Anagnostopoulos, F. (2020). Burden and Sleeping Disorders of Family Caregivers of Hemodialysis Patients with Chronic Kidney Disease-End Stage: A Cross-Sectional Study (pp. 33–40). https://doi.org/10.1007/978-3-030-32637-1_4

Kementerian Kesehatan. (2023). SURVEI KESEHATAN INDONESIA.

Keramatikerman, M., Varaei, S., Vaezi, M., & Sayadi, L. (2024). Peer support-based online education, burden of care and quality of life among family caregivers of patients with leukaemia: non-randomised clinical trial. BMJ Supportive and Palliative Care. https://doi.org/10.1136/spcare-2023-004610

Kumar, N. (2025). Long term caregiving health status and support system for caregivers. International Journal of Humanities and Arts, 7(1), 280–290. https://doi.org/10.33545/26647699.2025.v7.i1d.155

Lam, L. T. (2025). Caregiving and mental well-being: the role of caregivers’ age and insomnia. Frontiers in Psychiatry, 16. https://doi.org/10.3389/fpsyt.2025.1482890

Lim-Soh, J., Sung, P., Quach, H. L., & Malhotra, R. (2025). Sharing in Caring: Family Caregiving Task-Sharing Patterns for Older Adults in Singapore. Journals of Gerontology - Series B Psychological Sciences and Social Sciences, 80(1). https://doi.org/10.1093/geronb/gbae186

Liu, F., Shen, Q., Huang, M., & Zhou, H. (2023). Factors associated with caregiver burden among family caregivers of children with cerebral palsy: A systematic review. BMJ Open, 13(4). https://doi.org/10.1136/bmjopen-2022-065215

Makanjuola, O. J., & Ngcobo, W. B. (2025). Caregiver Burden and the Related Factors Among Family Caregivers of Older Persons With Schizophrenia: A Mixed Methods Study. International Journal of Older People Nursing, 20(5). https://doi.org/10.1111/opn.70047

Neller, S. A., Hebdon, M. T., Wickens, E., Scammon, D. L., Utz, R. L., Dassel, K. B., Terrill, A. L., Ellington, L., & Kirby, A. V. (2024). Family caregiver experiences and needs across health conditions, relationships, and the lifespan: a Qualitative analysis. International Journal of Qualitative Studies on Health and Well-Being, 19(1). https://doi.org/10.1080/17482631.2023.2296694

Nirmalasari, N., & Sari, I. W. W. (2025). Caregiver Burden on Caregiver with Chronic Disease. Journal Of Nursing Practice, 8(2), 437–447. https://doi.org/10.30994/jnp.v8i2.509

Seah, S. J., Mahirah, D., Ho Zhong Hao, C., Tan Yan Fang, C., Si Yinn, L., Yi, X., Koh Wan Cheen, C., Yong Ling, N., Chao Min, T., & Lian Leng, L. (2025). Unmet Needs Among Older Adult Informal Caregivers and Care Recipients in Singapore: A Qualitative Study. Journal of Aging and Social Policy. https://doi.org/10.1080/08959420.2025.2475265

Shankar, R., Luo, N., Lim, Y. W., Khatri, P., Leong, L., Teo, G. Y. X., Mukhopadhyay, A., Choo, J., Chua, H. R., Teng, G. G., Phua, J., & Hong, W. Z. (2024). Assessing caregiver burden in advanced kidney disease: protocol for a systematic review of the measurement properties of instruments and tools. BMJ Open, 14(2). https://doi.org/10.1136/bmjopen-2023-078767

Tampubolon, B., Purnamawati, D., Jumaiyah, W., & Rayasari, F. (2021). Pengalaman Penyintas Stroke Laki-Laki dan Perempuan Selama Recovery di Poliklinik Rumah Sakit Umum Tingkat II Dustira Bandung. Jurnal Penelitian Kesehatan Suara Forikes, 12. https://doi.org/10.33846/sf12416

Wei, L., Zhao, X., Chen, X., Yang, Y., He, Y., Liu, J., & Xian, J. (2024). Caregiver Burden and Its Associated Factors Among Family Caregivers of Hospitalized Patients with Neurocritical Disease: A Cross-Sectional Study. Journal of Multidisciplinary Healthcare, 17, 5593–5603. https://doi.org/10.2147/JMDH.S492890

World Health Organization. (2024, August 7). The top 10 causes of death. https://www.who.int/news-room/fact-sheets/detail/the-top-10-causes-of-death

Xu, Q., Ma, J., Zhang, Y., & Gan, J. (2024). Family resilience and social support as mediators of caregiver burden and capacity in stroke caregivers: a cross-sectional study. Frontiers in Psychology, 15. https://doi.org/10.3389/fpsyg.2024.1435867

Downloads

Published

2026-04-30

How to Cite

Lestari, N. D., & Azzahro, M. L. (2026). Gambaran Beban Family Caregiver dalam Perawatan Pasien dengan Penyakit Kronis Disertai Disabilitas Fisik. Jurnal Ilmiah Permas: Jurnal Ilmiah STIKes Kendal , 16(2), 101–110. Retrieved from https://journal3.stikeskendal.ac.id/index.php/JIPJISK/article/view/120

Similar Articles

1 2 > >> 

You may also start an advanced similarity search for this article.